Our Mission Statement
The PSF has been founded to support and educate families and professionals and to raise money for research to find a cure for individuals living with Proteus Syndrome. The Proteus Syndrome Foundation UK's efforts are dedicated to the loving memory of Patrick Conlin King, Alex Hoag and all other children who have lost their lives to Proteus syndrome.
The Support Group Staff
The Support Group is run by a small commitee:
Chairperson - Tracey Whitewood-Neal (parent of child with PS)
Secretary - Amanda Summers
Treasurer - Paul Collins
As an active group we exist to help the families affected by Proteus syndrome. Benefits of joining the support group include:
- Access to a medical advisory board, details of the latest research, invitation to conferences and the chance to attend the research programme.
- Emotional support by speaking to other families, family meetings, quarterly newsletters, family bulletins and access to the library of medical articles on Proteus syndrome.
- Funding available to improve the quality of life of the individual/family living with Proteus syndrome.